“Running Blind” Fundraiser Run For Usher Syndrome Is Sunday, June 6th


“Running Blind” is a fundraiser 5K Run and 1K Family Run/Walk for the Hear See Hope Foundation, and will be held on Sunday, June 6th starting at Noon at Archery Bistro at the Normandy Park Towne Center.

We’re proud to be sponsors of this event, as it is a benefit for the Hear See Hope Foundation, a non-profit that is fighting “Usher Syndrome,” which is the leading cause of deaf-blindness.

This inaugural 5K Run is inspired by Archery Bistro owner Todd McKittrick and his wife Lane, who have four sons, two of whom were born deaf and as time goes on, they become blind because of Usher Syndrome. The McKittrick family has set up the Hear See Hope Foundation to create awareness and raise money for this syndrome.

For one mile of the run, starting at 12:50pm, participants will have the choice to be guided to walk or run blindfolded while wearing ear plugs, so they can feel what it would be like to be deaf and blind.

As part of the festivities, a BBQ and beer garden, as well as a root beer garden for kids, will be set up on the Normandy Park Towne Center property. A hay maze will be available with the option of being blindfolded with earplugs, again to see what it is like to experience Ushers Syndrome.

Providing entertainment for the day will be the band The Approximations. Starting at noon and playing throughout the day, they will be performing on the Archery Bistro Stage, weather permitting.

Cost to participate in the race is $35 for adults and $20 for youth under the age of 14, which includes a t-shirt. There is an early registration discount, through May 15th, for $30 for adults and $20 for youth.

$5 from each registration fee will be donated to your local school of choice. Walk registrations will be accepted beginning at 10:00 am on race day but t-shirts will be based on availability.

Here’s more info from the foundation’s website:

The idea to start the Hear See Hope foundation started in August 2004 when our oldest son, Conner (then 5) was diagnosed with Usher syndrome Type 1. We immediately began doing research on Usher syndrome and all eye degenerative diseases. In this we found great hope that we could make a difference and that with funds there will be a cure for Usher syndrome in Conner’s lifetime. We discovered many very helpful and knowledgeable doctors and researchers that are doing all they can to find a cure for Usher syndrome.

With the birth of our youngest son Dalton in April of 2008, we have found a renewed sense of urgency to find a cure. Despite our best efforts to eliminate the chance of Usher syndrome in another child by undergoing Preimplantation Genetic Diagnosis (PGD), a process that was “guaranteed” to eliminate the chance of the Usher syndrome gene, Dalton was born with Usher syndrome. And so, we continue to work harder than ever to find a cure for Usher syndrome.

In late 2007, we were put in contact with another family in Boston who have a daughter named Bella (then 9) with Usher syndrome. We are collaborating with the Dunning family to fund much needed research. Mark Dunning, Bella’s father became a board member in 2008. We have our first Boston event scheduled in September 2008. Also, we are working with the researchers to create an Usher syndrome coalition and website.

We are always looking for other fundraising ideas and other corporate and individual partners to collaborate with to increase awareness of our cause. We need these partners help to fund a cure. If you have any ideas please contact us. There has been significant breakthroughs in retinal disease research in 2007and there is more hope than ever that a cure is in sight.

We are a 501(c)3 not for profit organization in search of funds to sustain the fight against Usher syndrome. Please help us make a difference by supporting us in our fundraising efforts for preventing, treating and curing Usher syndrome.

Thank you,
Todd and Lane McKittrick
Founders

Here are details on the event:

WHAT: Archery Bistro presents Running Blind 5K Run and 1K Family Run-Walk

WHEN: Sunday, June 6, 2010:

  • 12:00 PM start time for 5K
  • 12:50 PM start time for 1K family run-walk

WHERE: Race starts and ends at Archery Bistro in Normandy Park Towne Center (19803 1st Avenue So, Normandy Park, WA).

INFO: Benefiting the Hear See Hope Foundation fighting Usher syndrome. Usher syndrome is the leading cause of deaf-blindness.

That's right - this rocker is King County Prosecutor and local resident Dan Satterberg, whose band "The Approximations" will be playing at "Running Blind."

Finish Line Activities:

  • The Approximations Band, featuring King County Prosecutor Dan Satterberg, will be playing at the finish line.
  • Full Beer Garden
  • Root Beer Garden
  • Blind Hay Maze
  • Face Painting for the Kids
  • BBQ

REGISTRATION: Registration includes t-shirt, and can be completed online at www.hearseehope.com, in person at Archery Bistro (19803 1st Ave So • Normandy Park), by Fax: 206.299.9519 or even by mail – download the registration form here (PDF file):

Running Blind 5K Race
c/o Hear See Hope Foundation
17837 1st Ave So PMB 2
Normandy Park, WA 98148

Race Day: Walk up registrations will be accepted beginning at 10:00 on race day. T-shirts will be based upon availability.

Checks should be made out to “Hear See Hope.”

Race Day Details:

  • 10:00: Registration/check in begins
  • 11:50: Pre-race instructions
  • 12:00: 5K race begins
  • 12:50: 1K family run-walk begins
  • 1:30: Awards ceremony

After race festivities will be held at Normandy Park Towne Center near the finish line.

VIDEO: Here’s a video with more info on this cause:

[display_podcast]

Help the cause out by downloading, printing and posting a poster here (PDF file).


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